mistvision9 (mistvision9) wrote in vitiligo,


I just found this community (it had struck my mind earlier to search for a community like this, but I hadn't done it til now), and I have to say, I think it's neat.

I got my first spots on my knees when I was about seven (I'm 20 now), and from there it's spread to various parts of my body (elbows, hands, ankles, inner thighs, inner arms, etc). I'm part Native American, so when I tan in the summer, the spots show up pretty well. But I have never come across a) anyone who finds me weird or even slightly unattractive based on the disease (if anything, the guys I've dated think it's cute) or b) people with the disease who are ashamed of having it. I've met maybe a handful of people with the disease, and all of them seemed at least comfortable with it, if not semi-proud.

But finding this community...when I read through the last few entries posted on here, it occured to me that maybe not everyone is proud of their spots the way I am. Yes, I get teased; yes, I've been compared to Michael Jackson; yes, young children have called me "cow girl." But at the end of it, I like my spots. They make me, cliche as it sounds, special. I have been guilty of the sin of holding my hands up to admire them and the way the spots almost make gloves along my fingers. In short, as I already stated--I like my spots, and I don't plan on getting them treated. At all.

Of course, I don't have spots on my face or scalp, nor am I dark-skinned enough to make my spots hugely noticeable (especially in the winter). But even so, it surprised me to see that people want to get rid of their spots. It was a mindset I hadn't considered before--that maybe some people would want to hide them; that maybe some people would see them as a major social disadvantage. So to this community--thanks. I've learned several new things today.

And to this community, I also want to say--keep your spots, don't keep them, it's your choice. But I hope you can be proud of having them at some point, or at least make sure that having them doesn't completely define who you are and how you live your life. In the end, it's melanocytes--it really is skin deep.

So I send love out to my fellow spotted people :D Who knows, maybe we're aliens and we just don't know it. That'd be neat.

Have fun, everybody.
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October 15 2008, 04:00:08 UTC 8 years ago

Reading this made me smile(:

Lol I joke around about aliens too

It's good to know that your proud of your spots however little you may have.

My vitiligo makes me feel special sometimes too and it doesn't hold me back when it comes to friends and boys>:P

I'm not gonna lie and say that I don't wish that I had normal skin sometimes but still I wouldn't change a few things that my spots game me.

My 7yr old daughter has had vitiligo since she was an infant, so she doesn't know what it's like NOT to have it. At this point there is not a part of her body that doesn't have spots, its ALL OVER her feet, legs, torso, arms and face. And she is the most girlie princessy girl ever! We have always told her "come and put on your sunblock on your special skin." so she has grown up with the idea that she is a special little lady, and we (her family) really do feel like she is a special little girl. She loves to dress in cute shorts and skirts, never trying to hide her legs, but trying to wear the latest fashions like any other little girl.
Her "spots" are not a hindrance by any measure. She is a cheer-leader, and was student of the month twice last year, and once this year already!
We have never thought of "curing" her "spots". We wouldn't think of trying to "change" our little girl.
A leopard can never change their spots, and they are beautiful creatures, just like my little princess.